Hosted by the International Society for Biological and Environmental Repositories (ISBER)
A Roadmap to Trust in Biobanking: A Dialogue among Key Stakeholders
Saturday, April 18, 2020
2:15pm – 3:45pm
Anaheim Marriott, 700 W Convention Way, Anaheim, CA
All ISBER delegates are invited to attend the town hall. Registration is included with your meeting registration.
Do you work in biobanking, either directly or indirectly as a biobank manager, researcher/scientist, IRB member, or administrator? Or do you advocate for or work with patients whose biospecimens are stored in or donated to a biobank? Join the discussion!
The availability of large quantities of biospecimens and data for research use has led to major advances in science and medical care. These advances depend upon broad participation from individuals and groups, which is necessary to ensure the benefit of all. Maintaining the trust of research participants, the public and other stakeholders is critical to broad participation in biobanking and biospecimen research. Remaining worthy of public trust requires authentic participant and public engagement; trust is essential for biobank social sustainability.
Discussion at this gathering will focus on what makes a biobank trustworthy. This town hall forum, a first for ISBER, is designed for biobankers, researchers, IRB members, institutional officials, biobank participants and their representatives to discuss the factors that contribute to trustworthy biobanking. It will be an opportunity to identify best practices regarding topics such as consent, privacy, data sharing, and data security to help warrant the trust of research participants, the public, and other stakeholders. It will also be an opportunity to explore what ISBER should be doing to educate and engage the public regarding biobanking activities.
All ISBER annual meeting delegates are invited to attend the town hall and do not need to register separately. If you are not registered for the ISBER 2020 Annual Meeting, and wish to attend the town hall, please click here to register.
Presented by Advarra